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CMLSupport.com Health Tips
It's not too late to
get a flu shot this season. And as always seems to be the case, this
is expected to be a severe flu season. Even if you think you're one of those
people who "never" gets sick (well, except for CML!), you should still get a
flu vaccination. And remember, the vaccine is a killed vaccine, not live, so
it can't give you the flu. Do not use the new FluMist vaccine, as that does
contain live virus. People with allergies to eggs should not have the
vaccine. Talk to your doctor about getting the vaccine. Vaccination protects
you and the general community.
***
Don't forget your
sunscreen. Whether you're heading for the beach, working in the garden, or
just going for a bike ride, put on sunscreen. It's especially important for
people taking medications to limit sun exposure. Many medications can
increase your sensitivity to the sun and make you more likely to develop
sunburn. Among those drugs are antibiotics, nonsteroidal
anti-inflammatories, and perhaps imatinib mesylate (Gleevec). In addition,
some people who've experienced depigmentation while taking imatinib have
seen that effect made worse with sun exposure
***
When you're taking medications, it's important for your doctor to be
aware of all other medications you're taking, including
over-the-counter pain relievers and any nutritional supplements, including
vitamins, minerals and herbals. Remember, just because the product says it's
natural doesn't mean it's necessarily safe for you. Even some foods, such as
grapefruit, can interact negatively with medications. For information about
medications you are taking, including drug interactions, check out Mayo
Clinic's
drug search, featuring Micromedex.
***
It's flu season,
and that means you should have gotten your flu vaccine by now. But if not,
it's not too late yet. It's too early to tell how severe this flu season
will be. But people with cancer or chronic illnesses are at high risk of
getting the flu, and having a worse case. It can lead to life-threatening
complications. The flu season in the United States generally begins in
October and lasts through March or April, with peak intensity occurring
between late December and early March. October and November are the best
months to receive the vaccine, but there's still time to benefit from
vaccination. The vaccine is a dead vaccine, not live, so you cannot get the
flu from the vaccine. In addition, talk to your doctor about a pneumonia
vaccine.
***
St. John's wort and chemotherapy do not mix. A new study,
published in the Journal of the National Cancer Institute's Aug. 21, 2002,
issue, shows that the herbal supplement can jeopardize the effectiveness of
cancer treatment by speeding up the metabolism of the chemotherapy drug
Camptosar, which compromises its tumor-fighting capabilities. Cancer
patients are among the most likely to use complementary and alternative
medical remedies, such as herbal supplements, in hopes of reducing side
effects of conventional treatments or otherwise improving their quality of
life. But this new study shows that people on chemo should avoid St. John's
wort. It might also inhibit the effectiveness of other chemo medications,
such as Taxol.
***
Are you protecting your kids against cancer? If you're not slathering
them with sunscreen, not making sure they wear sunglasses, and letting them
get burned, you're not doing all you should be doing to protect them from
future deadly skin cancer. According to the American Cancer Society, an
estimated 53,600 Americans will be diagnosed with melanoma, the
deadliest form of skin cancer, this year. Of those diagnosed, nearly 10,000
are expected to die from it. There's a growing body of evidence to suggest
that sunburns at a young age lead to heightened risk of developing skin
cancer later in life. A tan might look healthy, but what it means is that
you've damaged your skin or your child's. And don't forget to make sure
your kids are protected while at school.
***
Want to add another magazine to your library? How about Coping
with Cancer magazine? Learn more about the magazine on the
Coping Web site. What it says about
itself: "Now celebrating its 15th Anniversary of providing knowledge, hope
and inspiration, its readers include cancer patients (survivors) and their
families, caregivers, healthcare teams and support group leaders." Another
one to check out is the new magazine
CURE, just coming out with
its first issue. CURE, Cancer Updates, Research, and Education, is a
magazine developed for individuals coping with cancer and blood disorders.
Know of other cancer-related consumer magazines?
Let me know so I can pass them
along.
***
Yes, even cancer patients need to follow healthy eating and exercising
strategies. Shape Up America! might be able to help. What is it?
Shape Up America! is a national initiative to promote healthy weight and
increased physical activity in America and includes a broad-based coalition
of industry, medical/health, nutrition, physical fitness, and related
organizations and experts. Through its
Web site, you can find out the latest information about safe weight
management, healthy eating, increased activity and physical fitness. Learn
about your body fat percentage (we dread this as much as you!) and barriers
to weight management. And be sure to check out the CyberKitchen for a
healthy eating lifestyle.
***
Five new cancers have been added to the list of diseases presumed to be
connected to the exposure of veterans to radiation during their
military service. Veterans diagnosed with cancer of the bone, brain, colon,
lung or ovary will have an easier time establishing entitlement to
compensation for their illnesses beginning March 26, 2002. The new rules
apply to those veterans who participated in "radiation-risk activities"
while on active duty, during active duty for training or inactive duty
training as a member of a reserve component. Under current statutes, the
following diseases are presumed to be service connected if the veteran
participated in a radiation-risk activity: leukemia (other than chronic
lymphocytic leukemia), cancer of the thyroid, breast, pharynx, esophagus,
stomach, small intestine, pancreas, gall bladder, bile ducts, salivary
gland, or urinary tract, multiple myeloma, lymphomas (except Hodgkin's
disease), primary cancer of the liver (except if cirrhosis or hepatitis B is
indicated) or bronchiolo-alveolar carcinoma. Veterans or their survivors can
file claims for compensation by contacting a VA regional office at (800)
827-1000 or visiting VA's Website.
***
The American Cancer Society is developing policy statements on pain
management now that some states are instituting regulations that may prevent
cancer patients from obtaining treatment for their pain. If you have had an
experience in which you could not get adequate pain relief, please describe
the facts and send to ggreer@cancer.org.
Your statement or "testimony" may help advocate for policies that guarantee
appropriate treatment of cancer-related pain. For more information about
pain management, see our Pain
Center.
***
Can't make heads or tails of your lab tests? Not sure what the
numbers or acronyms mean? The
Lab
Tests Online Web site might help. Here's what the site says about
itself: "Like many areas in medicine, clinical lab testing often provides
few simple answers to commonly asked questions. The issues on topics like
insurance reimbursement and reference ranges can be very complex. While we
can't offer the kinds of short, easy answers that we seem to be accustomed
to in this information age, we have attempted in the following articles to
break down the issues in a way that will help you to understand the issues a
bit better, and perhaps, to ask the appropriate questions of your doctor."
***
The 1996 Mental Health Parity Act expired on Oct. 1. A new and
improved bill to make sure mental health coverage in group plans is on a par
with medical and surgical benefits is winding its way through Congress. On
Oct. 30, the U.S. Senate passed an amendment to the FY2002 Labor, Health &,
Human Services, and Education Appropriations bill, based on the Mental
Health Equitable Treatment Act (S.543), introduced by Sens. Pete Domenici
(R-NM) and Paul Wellstone (D-MN). The legislation now requires approval by a
conference committee between the Senate and House of Representatives. Those
who have waited for this moment can take heart that action should be
completed by Thanksgiving. The amendment would prohibit discrimination
against mental illness by group health insurance plans. For more
information, click to the National Alliance
for the Mentally Ill.
***
The Kaiser Family Foundation has launched a comprehensive
state-by-state resource on health, with information about managed care and
insurance, Medicare, Medicaid, medical costs, and lots more. For
information, click to KFF's
State Health Facts Online.
***
The American Institute for Cancer Research is offering a free
20-page brochure on "Nutrition and the Cancer Survivor," with information on
the diet-cancer connection, tips on evaluating nutritional information and
detailed information about specific foods and supplements. The new brochure
is a companion to another free brochure, "Nutrition of the Cancer Patient,"
which focuses on dietary advice for people undergoing cancer treatment. For
a free copy, call 800-843-8114, Ext. 02, weekdays between 9 a.m. and 5 p.m.
***
Be extra careful if you are applying for an individual health
insurance policy on your own, and not a group plan through an employer. If
you are not honest about all of your medical problems, the health insurance
company can rescind your policy, and your outstanding medical claims will
not be covered. In some states, such as Florida, the policy can be declared
null and void from the start date, and you could become responsible for all
back medical expenses.
***
With the recent approval of Gleevec, there are some suggestions,
even coming from Novartis itself, to look for a health insurance company
that covers prescription medications. Remember, DO NOT drop your
current health coverage without having a new contract ready to begin. Also
bear in mind that laws in many states allow health insurers selling
individual coverage to deny coverage to people with pre-existing conditions
like cancer. If you have group coverage through an employer, chances are you
cannot enroll in a new plan until the open enrollment period.
Make sure you have your health insurer's phone number. Make sure you
understand its prescription coverage policy. And its appeal policy. Find
out, if you can, how quickly your health insurer adds newly approved drugs
to its formulary (the list of drugs it will cover). If there's a delay,
consider getting a letter from your doctor stating the need for this drug so
you can get a prescription anyway.
Find out what your copayments are. Find out if you can get a three-month
supply at once instead of just a one-month supply, so that you won't be
paying as much out of your own pocket each month.
If you don't have a case manager at your health insurer, it might be wise
to insist upon getting one. I had quite a battle over this, as my insurer
contended I didn't need one. But it pays off to have someone there in a
higher-ranking position who knows your case and can intervene when a
customer service rep isn't helping.
Remember that it's very possible in dealing with a customer service rep
at your insurer that they know less about your coverage than you do. That's
why you really *must* get a copy of your **subscriber agreement** (the
entire coverage document) and read it carefully. Also remember that if you
call your insurer eight times, you could get eight different answers.
Document all your phone conversations name of the rep, time, date, etc.
You should also familiarize yourself with the laws in your state. There
are very few national health insurance laws; most insurance coverage is
governed at the state level. That's why it's very difficult here on this
list to compare coverage to each other, even if you have the same health
insurer. What Blue Cross covers in one state might not apply to its coverage
in another state. Most states have extensive information about your
insurance rights (and responsibilities) on their state insurance department
Web sites. If you need help finding them, let me know.
This is a lot of work. But as you know, when it comes to health care, you
must know what your rights are and be prepared to advocate for them
yourself. Remember, no one cares as much about your coverage as you do.
If you don't have health insurance, you'll have to investigate the
various programs available for subsidizing coverage. Virtually every drug
company has a program like this. And there are also consumer groups that can
help.
***
Wondering how your health plan stacks up against others in the
United States? Want to find out how it rates on customer service?
Complaints? If you have access to the care you need? And how well it'll take
care of you if you get sick? Check out the
National Committee for Quality Assurance. The NCQA is a private,
nonprofit association committed to improving the quality of America's health
care. Among the many features it offers is an interactive tool designed to
help you find the health plan that's right for you or to check up on your
existing plan.
***
If you're battling a chronic or serious illness, keep a separate
health journal. In it, you can track such things as your blood counts, meds,
side effects, questions for your doctors, insurance issues, important Web
sites, books, and other resources. It's a good way to spot trends in your
illness, too. Solutions catalog
offers a 10-year journal that makes it especially easy to jot down quick
notes on your illness each day and compare it to prior years.
***
Know someone with cancer but not sure how to help? Here are a few
ideas: Don't ask if they want you to wash their car, walk their dog, shovel
their stoop or other similar favors, because chances are they'll say no,
hoping not to be a burden. To borrow from Nike, just do it. Call to say
hello, even when you know you'll get their voice mail. Don't insist they
keep their chin up. And don't tell them, "We could all get hit by a bus
tomorrow and die." It's not really comforting to tell them they have cancer
and they could get hit by a bus.
Give me a holler
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